Caregiver’s Knowledge regarding Homecare Management of Spastic Cerebral Palsy Children Under 12 Years Old in Rapareen Province
DOI:
https://doi.org/10.15218/ejnm.2022.07Keywords:
Spastic CP children, Caregiver, Internship and residency, Homecare servicesAbstract
Background and objectives: Spasticity, sometimes called hypertonia, makes movement difficult or even impossible. Spastic children with Cerebral Palsy face many health problems that need significant attention at home. This study aimed to assess caregivers’ knowledge about home care management of spastic CP children in the Rapareen Region.
Methods: A quantitative, descriptive cross-sectional study was carried out in the Rapareen Region of Sulaimani city. The period started from October 1st, 2020, to October 1st, 2021. Purposive (non-probability) sampling techniques of 115 caregivers, who attend rehabilitation centers in Ranya, Chwarqwrne, and Qaladeze in Rapareen province, were respectively recruited to the study. The investigators prepared a questionnaire format after reviewing related literature. Direct interview (face to face) and a home visit was conducted to collect the data. Descriptive statistics SPSS version 25 was used, and statistics of frequencies, percentages, and inferential statistical analysis of Chi-square test and regression were used.
Results: The vast majority (98.3%) of the primary caregivers were mothers of spastic CP children. Almost all (94.8) of the caregivers were married. The majority (88.7%) of caregivers were housewives. Less than half (48.7%) of the sample were between 31 to 40 years. More than three quarter (67%) of the sample were male children and more than half (65.2%) were School-age children with Spastic Cerebral Palsy. There was a statistically highly significant association between formal years of education and residency area of caregiver with the caregiver’s knowledge at a p-value of 0.020 and 0.003 respectively. Factors significantly associated with caregivers’ knowledge of homecare of spastic CP children include the level of education of caregiver, age of caregiver, and height of spastic Cerebral Palsy children.
Conclusion: The findings of the present study showed that level of education, age of caregiver, and residency areas are associated with caregiver’s knowledge regarding homecare of spastic Cerebral Palsy children.
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References
Capucho PY, Carnier SA, de Souza P, de Castro DC, Finocchio AP, de Oliveira DM, et al. Cerebral Palsy-lower limbs: rehabili-tation. Acta Fisiátrica. 2012 Jun 9;19(2):114-22.
Craig F, Savino R, Trabacca A. A systematic review of comorbidity between Cerebral Palsy, autism spectrum disorders, and Attention Deficit Hyperactivity Disorder. European Journal of Paediatric Neurology. 2019 Jan 1;23(1):31-42.
Hasan SS. Home care management among mothers having children with Cerebral Palsy in Erbil city. Zanco Journal of Medical Sciences (Zanco J Med Sci). 2014;18(2):702-9.
Adams MS, Khan NZ, Begum SA, Wirz SL, Hesketh T, Pring TR. Feeding difficulties in children with Cerebral Palsy: low‐cost caregiver training in Dhaka, Bangladesh. Child: care, health, and development. 2012 Nov;38(6):878-88.
Darcey M. Anaesthetic management of patients with Cerebral Palsy. AAGBI Anaes-thesia Tutorial of the Week. 2010;196
Alshehri A, Bach C. Challenges of Cerebral Palsy management. In American Society for Engineering Education (ASEE) Confer-ence 2014 Apr.
Hakkarainen E. Cognitive and motor pro-cessing in mild spastic Cerebral Palsy: An event-related potential study. Tampere University Press. 2017.
Mohammed FMS, Ali SM, Mustafa MAA. Quality of life of Cerebral Palsy patients and their caregivers: A cross-sectional study in a rehabilitation center Khartoum-Sudan (2014 – 2015). Journal of Neurosci-ences in Rural Practice. 2016 Jul;07(03):355–61.
Pereira, H.V., Paralisia Cerebral. Rev Resi-dencia Pediátrica, 2018. 8(1), pp.49-55.
Morilla CM, Caldas CACT, Scarpellini ACAV, Santos PL dos. Family resources and pro-motion of the development of children with Cerebral Palsy. Journal human growth and development. 2017 Sep 6;27(2:166.
Ashour DBM, Sewasi DM. Risk Factors & Complications of Cerebral Palsy in Misurata Hospital -LIBYA. Scholars Journal of Applied Medical Sciences (SJAMS) 2013 1(6):814-818.
Cooley WC. Providing a Primary Care Medi-cal Home for Children and Youth with Cere-bral Palsy. Pediatrics. 2014 Oct 1;114[4]:1106–13.
Alruwaished A, Ali B, Alhowaimil L, Alhowai-mil A, Alhowaimil N, Alessa A. Knowledge and attitude of caregivers of Cerebral Palsy children in Riyadh city. International Journal of Medicine in Developing Countries. 2020;12–7.
Marrón EM, Redolar-Ripol D, Boixadós M, Nieto R, Guillamón N, Hernández E, et al. Burden on caregivers of children with cere-bral palsy: predictors and related factors. Universitas Psychologica. 2013 Sep;12(3):767-77.
Hu X, Dolansky MA, Hu X, Zhang F, Qu M. Factors associated with the caregiver burden among family caregivers of patients with heart failure in southwest China: Factors associated with caregiver burden. Nursing & health sciences. 2016 Mar;18[1]:105–12.
Abd Allah ES, El Awady S, Hameed HS. Im-proving the care provided to Hemiplegics Cerebral Palsy Children by Their family care-givers: An Intervention Study. Journal of American Science. 2012;8(2).
Hirsh AT, Gallegos JC, Gertz KJ, Engel JM, Jensen MP. Symptom burden in individuals with Cerebral Palsy. Journal of Rehabilitation Research and Development. 2010;47(9):863.
Dambi JM, Mandizvidza C, Chiwaridzo M, Nhunzvi C, Tadyanemhandu C. Does an edu-cational workshop have an impact on care-givers’ levels of knowledge about cerebral palsy? A comparative, descriptive cross-sectional survey of Zimbabwean caregivers. Malawi Medical Journal. 2016;28(4):167-73.
Hegazy AE, Mekhamier HA. Effect of Self Learning Package on Mothers of Children with Cerebral Palsy. International Journal of Novel Research in Healthcare and Nursing Vol. 4, Issue 2, pp: 210-226, Month: May-August 2017, Available at: www.noveltyjournals.com.
Hadeya MH, Amal HA. Parental oral health knowledge, attitude, practice, and caries status of Sudanese Cerebral Palsy children. Pediatric health resource. 2017;2(11).
Ahmed S, Badr ED, Shenuda M, Mohamed A. Home care is offered by family caregivers to preschool children, suffering from hemiple-gic Cerebral Palsy. Journal of Biology, Agri-cult,ure, and Healthcare. 2015;5(4):65-72.
Ghazisaeedi M, Safari A, Sheikhtaheri A, Dalvand H. The effect of an android-based application on the knowledge of the care-givers of children with Cerebral Palsy. Medical Journal of the Islamic Republic of Iran. 2016;30:456.
Omole JO, Adegoke SA, Omole KO, Adeyemi OA. Pattern of Cerebral Palsy seen in children attending the outpatient paediatric physiotherapy clinics in Osun State tertiary hospitals in Nigeria. South African Journal of Child Health. 2018;12(2):52-7.
AL-Naddawi MN, Saadi NW, Abid AR. Risk Factors & Clinical Patterns of Cerebral Pal-sy in Children Welfare Teaching Hospital in Baghdad. Iraqi Postgraduate Medical Jour-nal. 2011;10(3).
Frank-Briggs AI, Alikor EA. Sociocultural issues and causes of Cerebral Palsy in Port Harcourt, Nigeria. Nigerian Journal of Pe-diatrics. 2011;38(3):115-9.
Richer LP, Dower NA, Leonard N, Chan AK, Robertson CM. Familial recurrence of Cer-ebral Palsy with multiple risk factors. Case Reports in Pediatrics. 2011 Jan 1;2011.
Olagunju TJ, Fatudimu MB, Hamzat TK. Clinical-demographic variables and compli-ance with home Programme among Nige-rian informal caregivers of children with Cerebral Palsy. Medical Journal of Zambia. 2017;44(3):157-65.
Bailes AF, Giannotti M, Bellows DM, Shus-terman M, Lyman J, Horn SD. Caregiver knowledge and preferences for gross mo-tor function information in Cerebral Palsy. Developmental Medicine & Child Neurolo-gy. 2018 Dec;60(12):1264-70.
Nitu KS, Dahiya H. Audio Visual Aids: An Essential Tool for Teaching. Amarjeet Kaur Sandhu. 2017 Jan;9(1):64.
Araújo LA, Silva LR. Anthropometric as-sessment of patients with Cerebral Palsy: which curves are more appropriate? Jornal de pediatria. 2013 May 1;89(3):307-14.
García-Iñiguez JA, Vásquez-Garibay EM, García-Contreras A, Romero-Velarde E, Troyo-Sanroman R. Assessment of anthro-pometric indicators in children with Cere-bral Palsy according to the type of motor dysfunction and reference standard. Nu-trición Hospitalaria. 2017;34(2):315-22.
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